A body in the world In Part 1 of this blog, I wrote about spasticity. I wrote that spasticity is a neuromuscular condition that impacts every movement my daughter contemplates in her little 2.5 year old life. It’s a condition that makes her very cross sometimes because her body won’t let her do what she …
This blog has been brewing for a while. It was motivated initially as a discussion on the treatment of spasticity in cerebral palsy. SuperLily, in the first instance, is a blog to provide parents with a parent-sided perspective about raising a child with CP. It was also driven by a desire to talk about what “spasticity” …
You can listen to this Podcast on Anchor.fm or Spotify. The transcript follows below. ROBYN Welcome to the third episode of the SuperLily Podcast. Today I am so excited to welcome Nicole Hilburn, who is an experienced paediatric physiotherapist, and who we have been lucky to work with initially in South Africa and subsequently via …
Episode 3 of the SuperLily Podcast is now available Read More »
Placenta Previa & the Birth of a Micro-Preemie: A Personal Story of Hope and Faith. By Julia Thomashoff I am delighted to introduce our second guest contributor, Julia Thomashoff. Julia’s daughter, Chloé, was born at 27 weeks. Six years later, when Lily was in the NICU, Julia became a great confidante for me, especially in …
This blog takes its inspiration from a recent Instagram post by @thefightingirishmartins. This is a fantastic blog written by Michelle Martin, the mum of twins born at 27 weeks, who is passionate about raising awareness primarily about the syndrome that precipitated their early birth, and also post-IVH hydrocephalus. Michelle’s Instagram post had a roaring response from …
Last week Lily turned 2. I asked my sister, Sally Evans, an accomplished journalist and editor, to write a guest blog in celebration of this milestone. ________ And above all, watch with glittering eyes the whole world around you because the greatest secrets are always hidden in the most unlikely places. Those who don’t believe …
SuperLily Podcast on Anchor.fm SuperLily Podcast on Spotify TRANSCRIPT: ROBYN Hello, a belated Happy New Year, and welcome to the second episode of the SuperLily Podcast. Today I am so excited to welcome Dr Gillian Saloojee, who is an experienced physiotherapist in South Africa. She has a special interest in developing and strengthening therapy services …
Episode 2 of the SuperLily Podcast is now available. Read More »
An Innovative Way to Support Children with Special Needs Billy Samuel Mwape is the Zambian father of a little boy called Lubuto who, like Lily, has cerebral palsy. In September 2020 he gave a TED Talk entitled “An Innovative Way to Support Children with Special Needs” In his talk he describes the approach he …
Hello Dear Followers and SuperLily Fans As you are now aware, I started SuperLily for parents and families who are going through a journey similar to ours with my daughter, Lily. I wanted to create a platform for information (for parents by parents) and for sharing experiences. My goal for 2021 is to try to …
SuperLily is about real voices and community.
A platform for real life conversations about premature birth and cerebral palsy.
IMPORTANT DISCLAIMER! I am not a medical expert, nor do I pretend to have all the answers. I have done a lot of research to try and ensure the accuracy of the information I provide here, but ultimately SuperLily is a blog and you should not treat this site as an authority on any matter. Please consult registered professionals for medical or therapeutic advice.
