Have you ever had an ear infection or a blocked ear and felt slightly dizzy or off-balance? Do you know why you feel this way? Have you ever thought how it is that your body automatically knows how to move its limbs? The answer is pretty miraculous, as all elements of the human body are. …
I am excited to say that I have made my first attempt at recording an interview using the podcast medium. Jessica Tuohy, Lily’s physiotherapist, very sportingly agreed to be my first guinea pig. In this episode, as a follow-on from my last blog post, we talk about early intervention, about what parents can expect from …
Episode 1 of the new SuperLily Podcast is now available (Transcript now included here). Read More »
Did you know that the brain has the capacity to change throughout life – to reorganise itself, sometimes to replace cells that die, and to create new connections? This malleability of the brain, which is a relatively recent discovery, is called “plasticity” or more accurately “neuroplasticity”. A neuroscientist called Norman Doidge in his fascinating book, …
THE PLASTIC BRAIN (& THE IMPORTANCE OF EARLY INTERVENTION) Read More »
If you are a parent, you will know the feeling of taking your infant home for the first time – very excited, a little nervous, a tiny bit anxious, and completely unprepared for what lies ahead. In many respects looking after a preemie when they are finally discharged from the NICU is the same. However, …
You know that dream where you’re at school or you’re about to give a presentation at work, and you realise you’re completely naked? Well, after publishing SuperLily and my first blog last week, I have to admit that I felt a little like that. Until that point, ours had been such a private journey and, …
It is one thing to bemoan the status quo, another to try to propose potential improvements. In Part 1 of this blog, I laid bare statistics that show increasing preterm birth rates and highlighted a concern, based on our own lived experience, that there is insufficient awareness about what it is to have a baby …
WHY WE NEED TO TALK ABOUT PREMATURE BIRTH – PART 2 Read More »
PART 1 PRETERM BIRTH RATES ARE RISING Did you know that more than one in ten babies around the world are born preterm (before 37 weeks)? A 2012 study[1] by the World Health Organisation (WHO) determined that 10.6% of all live births globally are preterm. That’s about 15 million babies, of whom about 1 million …
SuperLily is about real voices and community.
A platform for real life conversations about premature birth and cerebral palsy.
IMPORTANT DISCLAIMER! I am not a medical expert, nor do I pretend to have all the answers. I have done a lot of research to try and ensure the accuracy of the information I provide here, but ultimately SuperLily is a blog and you should not treat this site as an authority on any matter. Please consult registered professionals for medical or therapeutic advice.
