You can listen to this Podcast on Anchor.fm or Spotify. The transcript follows below. ROBYN Welcome to the third episode of the SuperLily Podcast. Today I am so excited to welcome Nicole Hilburn, who is an experienced paediatric physiotherapist, and who we have been lucky to work with initially in South Africa and subsequently via …
Episode 3 of the SuperLily Podcast is now available Read More »
Placenta Previa & the Birth of a Micro-Preemie: A Personal Story of Hope and Faith. By Julia Thomashoff I am delighted to introduce our second guest contributor, Julia Thomashoff. Julia’s daughter, Chloé, was born at 27 weeks. Six years later, when Lily was in the NICU, Julia became a great confidante for me, especially in …
Last week Lily turned 2. I asked my sister, Sally Evans, an accomplished journalist and editor, to write a guest blog in celebration of this milestone. ________ And above all, watch with glittering eyes the whole world around you because the greatest secrets are always hidden in the most unlikely places. Those who don’t believe …
Have you ever had an ear infection or a blocked ear and felt slightly dizzy or off-balance? Do you know why you feel this way? Have you ever thought how it is that your body automatically knows how to move its limbs? The answer is pretty miraculous, as all elements of the human body are. …
I am excited to say that I have made my first attempt at recording an interview using the podcast medium. Jessica Tuohy, Lily’s physiotherapist, very sportingly agreed to be my first guinea pig. In this episode, as a follow-on from my last blog post, we talk about early intervention, about what parents can expect from …
Episode 1 of the new SuperLily Podcast is now available (Transcript now included here). Read More »
If you are a parent, you will know the feeling of taking your infant home for the first time – very excited, a little nervous, a tiny bit anxious, and completely unprepared for what lies ahead. In many respects looking after a preemie when they are finally discharged from the NICU is the same. However, …
It is one thing to bemoan the status quo, another to try to propose potential improvements. In Part 1 of this blog, I laid bare statistics that show increasing preterm birth rates and highlighted a concern, based on our own lived experience, that there is insufficient awareness about what it is to have a baby …
WHY WE NEED TO TALK ABOUT PREMATURE BIRTH – PART 2 Read More »
PART 1 PRETERM BIRTH RATES ARE RISING Did you know that more than one in ten babies around the world are born preterm (before 37 weeks)? A 2012 study[1] by the World Health Organisation (WHO) determined that 10.6% of all live births globally are preterm. That’s about 15 million babies, of whom about 1 million …
SuperLily is about real voices and community.
A platform for real life conversations about premature birth and cerebral palsy.
IMPORTANT DISCLAIMER! I am not a medical expert, nor do I pretend to have all the answers. I have done a lot of research to try and ensure the accuracy of the information I provide here, but ultimately SuperLily is a blog and you should not treat this site as an authority on any matter. Please consult registered professionals for medical or therapeutic advice.
